Accessibility,  Events

Walk and Roll Event-100 Trains for Ataxia

ataxia-cbc-big-ben croppedMay 8 is the Paris date for the 100 Trains for Ataxia. This global event, an “accessible walk”, is taking place along the Promenade Plantée (Coulée verte René-Dumont).

Iain McGeachin, organizer and participant, wrote to me about the event, one of a series of 17 similar walks taking place in major European cities. Due to Ian’s own physical limitations with Ataxia, all events are very accessible to all.

Ataxia is a form of spinocerebellar ataxia (idiopathic), very rare genetic condition with various Ataxia types. The May and June events as part of a larger, global fundraising event for Ataxia UK (the registered ataxia charity in the UK) to raise general awareness of the ataxia condition and united with other Ataxia sufferers.

On a train when Ataxia hit him
Iain was fulfilling a life-long dream on a 50,000 km RTW train journey (round the world). About midway through on the Trans-Siberian Express in Siberia, he fell ill and returned home.

“I had never heard of it myself, before being diagnosed with it,” he writes. After two years and a “stream of doctors and neurologists”, he was diagnosed. Read more about the malady, the 2016 Walk ’n’ Roll event, research and fundraising.

A drop-down calendar on the 100 Trains for Ataxia website. Other cities participating are London, Milan, Pisa, Rome, Florence, Venice, Ljubljana, Budapest, Bratislava, Brno, Prague, Berlin, Copenhagen, Amsterdam and Brussels.

Logistical information from the 100 Trains for Ataxia website:
Meeting Point
The Rue de Lyon entrance to the Promenade Plantée (see the map on the website). The meeting point will be very clearly marked. Just look for the “Ataxia” balloons (or a rather tall chap wearing a kilt!).

Meeting Time
2:45 p.m. – 2:55 p.m. The walk begins at 2 p.m. sharp. It is recommended to arrive at the meeting point a few minutes before then. Ian will be at the Meeting Point from 2:45 p.m. (Ian should be fairly easy to spot!, he writes.)

Walk Length/Duration
Approximately 4 kilometres (2.5 miles). The time taken depends on your “walking and rolling” pace. He estimates no more than one hour.

If you are unable to participate yourself, please sponsor this event using the Ataxia UK Walk’n’Roll fundraising page.

100% of your donation (plus an additional 25% if you are a UK taxpayer) goes directly to Ataxia UK.

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This Web site and and its blog articles are for travelers to Paris who are looking for advice from someone who lives in Paris. These tips are "for Parisians at heart". Many people would like to visit, some can and some cannot - so I will help you enjoy a glimpse of the city and its surroundings. This project has been ongoing since 2002. Prior to living in Paris (since 1992) my European history began in the early 70s with three years in Wiesbaden, Germany. My next foray onto the Continent was in the mid-80s after graduation from the University of Florida (where I met Erik): traveling around Europe and UK with my friend, Margie, hitchhiking around and working in Ireland. After living and working as a journalist in Sweden for four years, traveling on boats, the Trans-Siberian Railway, local trains and planes took Erik and I around the world. I began working as a flight attendant in 1990 for American Airlines, based in Chicago. We moved to Paris, France in 1992 where I commuted between Paris and Chicago for my flight attendant/stewardess job. Finally my inner voice said "Stop!" and I left American Airlines six weeks shy of 20 years January 1, 2010. Now that is over and I am back working as a journalist and photographer full time on Colleensparis.com - My videos are posted on YouTube on the colleensparis youtube channel. and I am active in Toastmasters 75. Enjoy!